Chronic Pain Perspectives : Resources

Resources for Patients

Aches and Gains

A weekly radio talk show about pain and pain relief hosted by Paul Christo. MD, a board certified, Harvard-trained anesthesiologist and Johns Hopkins-trained pain medicine specialist.

American Academy of Pain Medicine (AAPM)/Patient Center

A patient resource that provides comprehensive information about pain and a Search tool to locate an AAPM pain specialist.

American Chronic Pain Association (ACPA)

The ACPA offers peer support and education in pain management skills to people with pain, family and friends, to enable them to work more effectively with their health care team toward a higher quality of life.

American Headache Society/Patient Education

Patient education pages, article summaries, and podcasts for people with headache and migraine.

Arthritis Foundation

Very comprehensive site.

Chronic Pain Rehabilitation Program

The Chronic Pain Rehabilitation Program at the VA hospital in Tampa, FL is an outstanding resource for veterans from all over the US.

Fibromyalgia Network

Educational materials, including an extensive newsletter.

National Fibromyalgia & Chronic Pain Association

A nonprofit organization that works to support people who have chronic pain illnesses and their families and friends through continuing education, networking with support groups/advocates, and affiliation with professional organizations.

National Pain Foundation

A nonprofit organization with a goal of advancing functional recovery of persons in pain through information, education, and support, founded on the belief that early intervention of pain conditions can positively change the direction of a person's life.

National Shingles Foundation

A nonprofit organization dedicated to the fight against the varicella-zoster virus (VZV) and VZV infections (chickenpox, shingles and post-herpetic neuralgia) through research and education.

National Vulvodynia Association

A nonprofit organization to educate and support women suffering from vulvodynia, create public and professional awareness about the seriousness of the disorder, and encourage research.

Power of Pain Foundation

A foundation to promote patient and public awareness and education about neuropathic chronic pain conditions, including reflex sympathetic dystrophy, diabetic neuropathy, and post-cancer pain.

Reflex Sympathetic Dystrophy Syndrome Association (CRPS)

An association dedicated to promoting public and professional awareness of CRPS and to educate those afflicted with the syndrome, their families, friends, insurance and healthcare providers on the disabling pain it causes. Activities include patient support groups, advocacy, and research.

Sickle Cell Information Center

www.scinfo.org is a very large and comprehensive site for patients and health care professional education, including research updates, news, and resources.

The Foundation for Peripheral Neuropathy

A rich resource of information about the causes, evaluation, and management of peripheral neuropathies for people who suffer from these conditions.

The Neuropathy Association

A link to support groups for people with peripheral neuropathy, plus personal stories and resources about living with the disorder.

Tips for living with fibromyalgia

A printable patient handout about fibromyalgia from the journal Neurology Reviews.

TNA The Facial Pain Association

The mission of The Facial Pain Association is to serve as an advocate for patients living with neuropathic facial pain, including trigeminal neuralgia, by providing information, encouraging research, and offering support.

U.S. Department of Health and Human Services/ U.S. Food and Drug Administration FDA acts to reduce harm from opioid drugs

An article fro consumers about the government’s plan to reduce the abuse of prescription analgesic drugs.

U.S. Pain Foundation

An online resource to support, educate, and advocate for people living with pain.